{"id":2157,"date":"2025-01-24T12:45:54","date_gmt":"2025-01-24T16:45:54","guid":{"rendered":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/?p=2157"},"modified":"2025-01-24T13:02:18","modified_gmt":"2025-01-24T17:02:18","slug":"mets-tes-baskets-et-bats-la-maladie-ela-a-lecole-berteau-marie-rose","status":"publish","type":"post","link":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/?p=2157","title":{"rendered":"\u00ab\u00a0Mets tes baskets et bats la maladie\u00a0\u00bb ELA \u00e0 l’\u00e9cole Berteau MARIE-ROSE"},"content":{"rendered":"\n

Le lundi 14 janvier 2025<\/strong>, Mr VICTORIN<\/strong> est venu pour la dict\u00e9e ELA.
Des temps sportifs ont \u00e9galement \u00e9t\u00e9 am\u00e9nag\u00e9s : une marche pour les maternelles et un court de fitness pour les plus grands.<\/p>\n\n\n\n

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\u00ab\u00a0Mets tes baskets et bats la maladie\u00a0\u00bb<\/strong><\/p>\n\n\n\n

Cette campagne permet chaque ann\u00e9e aux \u00e9l\u00e8ves et \u00e0 leurs enseignants d\u2019\u00e9changer sur les valeurs de citoyennet\u00e9, de solidarit\u00e9 et de respect, et de collecter des fonds pour financer la recherche m\u00e9dicale ainsi que l\u2019accompagnement des familles concern\u00e9es. Parce qu\u2019il est essentiel pour les personnes atteintes d\u2019une leucodystrophie et leurs familles de cr\u00e9er un v\u00e9ritable \u00e9lan de solidarit\u00e9, ELA invite le plus grand nombre \u00e0 se mobiliser pour son combat.<\/p>\n\n\n\n

A propos d\u2019ELA\u00a0:\u00a0<\/strong>Fond\u00e9e en 1992, l\u2019Association Europ\u00e9enne contre les Leucodystrophies (ELA), parrain\u00e9e depuis 23 ans par Zin\u00e9dine Zidane, regroupe des familles qui se mobilisent pour vaincre ces maladies g\u00e9n\u00e9tiques rares qui d\u00e9truisent la my\u00e9line (la gaine des nerfs) du syst\u00e8me nerveux. Chaque semaine en France, 3 \u00e0 6 enfants naissent atteints de ces pathologies qui entra\u00eenent progressivement la perte des fonctions vitales : la vue, l’ou\u00efe, la m\u00e9moire, la locomotion\u2026 L\u2019association, reconnue d\u2019utilit\u00e9 publique depuis 1996, a 4 missions principales :
– Financer la recherche m\u00e9dicale
– Informer et accompagner les familles concern\u00e9es
– Sensibiliser l\u2019opinion publique
– D\u00e9velopper son action au plan international<\/p>\n\n\n\n

www.ela-asso.com<\/strong><\/a><\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Le lundi 14 janvier 2025, Mr VICTORIN est venu pour la dict\u00e9e ELA.Des temps sportifs ont \u00e9galement \u00e9t\u00e9 am\u00e9nag\u00e9s : … <\/p>\n

Lire la suite… \u00ab\u00a0\u00ab\u00a0Mets tes baskets et bats la maladie\u00a0\u00bb ELA \u00e0 l’\u00e9cole Berteau MARIE-ROSE\u00a0\u00bb<\/span><\/a><\/p>\n","protected":false},"author":390,"featured_media":2170,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"episode_type":"","audio_file":"","podmotor_file_id":"","podmotor_episode_id":"","cover_image":"","cover_image_id":"","duration":"","filesize":"","filesize_raw":"","date_recorded":"","explicit":"","block":"","itunes_episode_number":"","itunes_title":"","itunes_season_number":"","itunes_episode_type":"","footnotes":""},"categories":[1,23,27,16],"tags":[],"ppma_author":[29],"class_list":["post-2157","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-circonscription-du-marigot","category-education-physique-et-sportive","category-francais","category-rep-nero"],"authors":[{"term_id":29,"user_id":390,"is_guest":0,"slug":"palcibiade","display_name":"Precillia ALCIBIADE","avatar_url":"https:\/\/secure.gravatar.com\/avatar\/8f04bc2f240e6ebe06f85330d032458bafec2d55854afb04a327afef19a9fef1?s=96&d=mm&r=g","0":null,"1":"","2":"","3":"","4":"","5":"","6":"","7":"","8":""}],"_links":{"self":[{"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/posts\/2157","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/users\/390"}],"replies":[{"embeddable":true,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2157"}],"version-history":[{"count":4,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/posts\/2157\/revisions"}],"predecessor-version":[{"id":2168,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/posts\/2157\/revisions\/2168"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=\/wp\/v2\/media\/2170"}],"wp:attachment":[{"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2157"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2157"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2157"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/site.ac-martinique.fr\/circonscription-marigot\/index.php?rest_route=%2Fwp%2Fv2%2Fppma_author&post=2157"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}